Exceptional patients- Who are they?
The exceptional patient with cancer is a puzzling phenomenon that has not been formally investigated. These are the people who survive a particularly deadly form of cancer that usually proves fatal within months; yet, years later these individuals continue to live and thrive. They are the ones that represent the exception in the statistics. The rare and spectacular occurrence of remarkable recovery against all odds, totally inexplicable but real, is something that many oncologists have seen in their practice.
Research on this topic is very limited. In the past, other terms have been used to describe the phenomenon: “spontaneous remission,” “spontaneous healing”, “spontaneous regression”, “miracle cures”, “remarkable recovery”, and “exceptional disease course”.
Most previous studies mentioned the phenomenon of exceptional disease course as a rare occurrence. However, few recent reports suggest that exceptional disease course might occur much more often than what was estimated previously.
Explanation for this phenomenon
There is no clear explanation for the phenomenon. Some researchers note that some exceptional patients experience a spiritual awakening before the remission took place, suggesting that the patients themselves had an important role in the healing process.
During the last few years, we have identified a large number of these patients. We spoke to them and their families discussed their perception on the reason for their success and slowly gathered valuable lessons. In consultations we describe some of these patients, the lessons we learned from them and in certain situations discuss how to implement
We recommend to all patients that have interest in this topic to look at a few resources:
Exceptional Patients Study 2016
Exceptional Patients or Exceptional Doctors- Patient Doctor Communication as a Survival Factor?
Living outliers: experiences, insights and narratives of exceptional survivors of incurable cancer
Activism among Exceptional Patients with cancer
NCI Clinical Trial
Clinical Trials 2014 NCI
Exceptional Responders Initiative NCI Study 2018
The exceptional patient 2010
The exceptional patient- 2013
Integrative oncology and exceptional patients- Thoughts and Reflections Dr Frenkel
The Exceptional Patient in Cancer Care
Six months to live ten years later....
Six months to live....youtube
Six months to live ten years later....Hebrew
Exceptional patients Menta (Hebrew) April 2010
Perspective of one patient
Informing Hope JCO June 2010
Authors: Caryle Hirshberg and Marc Ian Barasch
Publisher: Riverhead (March 8, 1995)
The will to live - Rachel Naomi Remen
The will to live- Youtube
If she can do it.... video
Common Attributes of "Miracle Survivors"
From Incurable to Incredible
This unique book "From Incurable to Incredible" features 27 stories of cancer survivors who
shocked everyone by overcoming a terminal prognosis.
6 Months to Live 10 Years Later: An Extraordinary Healing Journey & Guide to Well Being.
MS Exceptional Patient- Dr Terry Wahls
The Happy Secret TED 2012
- TED Lecture- Blue ZONE Secret to Longevity
Kelly Turner- Against All Odds: Cancer counselor and researcher Dr. Kelly A. Turner, PhD describes her innovative research on Unexpected Cancer Remission 6 Behaviours
Making tough decisions after being diagnosed with pancreatic cancer
Radical remission- Medscape 2014
Radical Remission- The summary of Kelly Turner work published recently
Spontaneous Remission- Link to a text that was published by Institute of Noetic Sciences in 1993 which is a compilation of 3500 references of spontaneous remission.
Even with pancreatic cancer there are survivors- Link to a few stories
Dr Oz and Exceptional Patients
The Remarkable Story of Ernestine Shepherd
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